Privacy Policy

The Stroke Sur­vivor Organ­i­sa­tion Fac­ul­ty Tool (SSOFT) web­site is pro­vid­ed by the Stroke Alliance for Europe (SAFE), a non-prof­it mak­ing organ­i­sa­tion reg­is­tered in Bel­gium (ASBL 0661.651.450) with reg­is­tered office at Rue Wash­ing­ton 40, Brus­sels 1050, Bel­gium. For the pur­pos­es of pro­tect­ing your per­son­al infor­ma­tion, SAFE (referred to as we”, us” or our”) is the data controller.

We will treat all infor­ma­tion we hold which iden­ti­fies you as an indi­vid­ual (your Per­son­al Infor­ma­tion”) as con­fi­den­tial (although we reserve the right to dis­close this infor­ma­tion in the cir­cum­stances set out below). We will keep it on a secure serv­er and we will ful­ly com­ply with all applic­a­ble data pro­tec­tion and con­sumer leg­is­la­tion from time to time in place.

What Personal Information do we collect?

We mon­i­tor the activ­i­ty on the SSOFT web­site and cap­ture infor­ma­tion from vis­i­tors that will help us improve the qual­i­ty of our ser­vice. We may col­lect infor­ma­tion about how you use the SSOFT web­site (User Infor­ma­tion) including:

  • where you are on the inter­net (e.g. the URL you came from, IP address, domain types like .co​.uk and .com),
  • your brows­er type
  • the coun­try and tele­phone area code where your com­put­er is located,
  • the pages of our web­site that were viewed dur­ing your visit,
  • the adver­tise­ments you clicked on; and
  • any search terms that you entered on our website.

As you inter­act with the SSOFT web­site we auto­mat­i­cal­ly col­lect the User Infor­ma­tion by using cook­ies (see our Cook­ies Pol­i­cy), [serv­er logs], and oth­er sim­i­lar tech­nolo­gies. We col­lect User Infor­ma­tion where it is nec­es­sary for our legit­i­mate inter­ests in devel­op­ing the SSOFT web­site and your inter­ests and fun­da­men­tal rights do not over­ride those inter­ests. If you reg­is­ter with us we may also collect:

  • your email address
  • first name
  • last name
  • coun­try
  • title

This infor­ma­tion is col­lect­ed with your con­sent when you cre­ate your online account or by cor­re­spond­ing with us by post, phone, email or oth­er­wise. It is impor­tant that the Per­son­al Infor­ma­tion we hold about you is accu­rate and cur­rent. Please keep us informed if your Per­son­al Infor­ma­tion changes dur­ing our rela­tion­ship with you. 

What do we use your Personal Information for?

We use your infor­ma­tion only for the fol­low­ing purposes: 

  • sta­tis­ti­cal or sur­vey pur­pos­es to improve the SSOFT and its ser­vices to you;
  • to admin­is­ter the SSOFT website;
  • if you con­sent, to noti­fy you of activ­i­ties, prod­ucts or ser­vices that may be of inter­est to you (mar­ket­ing communications).

If you no longer wish to receive mar­ket­ing com­mu­ni­ca­tions from us you can opt-out by [using the unsub­scribe option con­tained in each mar­ket­ing com­mu­ni­ca­tion] or by [email­ing unsub­scribe’ to [email address] at any time].

If we need to use your Per­son­al Infor­ma­tion for any pur­pose unre­lat­ed to those described in this Pri­va­cy Pol­i­cy we will noti­fy you and will explain the legal basis which allows us to do so.

Sharing your Personal Information

We will not share your Per­son­al Infor­ma­tion with any com­pa­ny for mail­ing or mar­ket­ing pur­pos­es. You should be aware how­ev­er that if we are request­ed by the police or any oth­er reg­u­la­to­ry or gov­ern­ment author­i­ty to pro­vide your Per­son­al Infor­ma­tion and/​or User Infor­ma­tion, we are enti­tled do so and may be oblig­ed to do so.

We do not trans­fer data out­side of the EEA, and will not trans­fer your Per­son­al Infor­ma­tion to coun­tries that have not been deemed to pro­vide an ade­quate lev­el of pro­tec­tion for per­son­al data by the Euro­pean Commission.

Keeping your Personal Information

We will only retain your Per­son­al Infor­ma­tion for as long as nec­es­sary to ful­fil the pur­pos­es we col­lect­ed it for, includ­ing for the pur­pos­es of sat­is­fy­ing any legal, account­ing or report­ing require­ments. To deter­mine the appro­pri­ate reten­tion peri­od for Per­son­al Infor­ma­tion we con­sid­er the amount, nature and sen­si­tiv­i­ty of the infor­ma­tion, the poten­tial risk of harm from unau­tho­rised use or dis­clo­sure of your Per­son­al Infor­ma­tion and whether we can achieve those pur­pos­es though oth­er means.

Your legal rights

You have the right to:

  • Request access to your Per­son­al Infor­ma­tion (com­mon­ly known as a data sub­ject access request’). This enables you to receive a copy of the per­son­al infor­ma­tion we hold about you and check that we are law­ful­ly pro­cess­ing it.
  • Request cor­rec­tion of incom­plete or inac­cu­rate Per­son­al Infor­ma­tion we hold about you.
  • Request era­sure of your Per­son­al Infor­ma­tion. This enables you to ask us to delete or remove your Per­son­al Infor­ma­tion when there is no good rea­son for us con­tin­u­ing to process it.
  • Object to pro­cess­ing of your Per­son­al Infor­ma­tion where we are rely­ing on a legit­i­mate inter­est and there is some­thing about your par­tic­u­lar sit­u­a­tion which makes you want to object to pro­cess­ing on this ground as you feel it impacts on your fun­da­men­tal rights and free­doms. You also have the right to object where we are pro­cess­ing your Per­son­al Infor­ma­tion for direct mar­ket­ing purposes.
  • Request restric­tion of pro­cess­ing of your Per­son­al Infor­ma­tion. This enables you to ask us to sus­pend the pro­cess­ing of your Per­son­al Infor­ma­tion in the fol­low­ing sce­nar­ios: (a) if you want us to estab­lish the information’s accu­ra­cy; (b) where our use of the infor­ma­tion is unlaw­ful but you do not want us to erase it; © where you need us to hold the data even if we no longer require it as you need it to estab­lish, exer­cise or defend legal claims; or (d) you have object­ed to our use of your data but we need to ver­i­fy whether we have over­rid­ing legit­i­mate grounds to use it.
  • Request trans­fer of your Per­son­al Infor­ma­tion to you or to a third par­ty. We will pro­vide to you, or a third par­ty you have cho­sen, your Per­son­al Infor­ma­tion in a struc­tured, com­mon­ly used, machine-read­able for­mat. Note that this right only applies to auto­mat­ed infor­ma­tion which you ini­tial­ly pro­vid­ed con­sent for us to use or where we used the infor­ma­tion to per­form a con­tract with you.
  • With­draw con­sent at any time where we are rely­ing on con­sent to process your Per­son­al Infor­ma­tion. How­ev­er, this will not affect the law­ful­ness of any pro­cess­ing car­ried out before you with­draw your consent.

You also have the right to make a com­plaint at any time to the Bel­gian super­vi­so­ry author­i­ty for data pro­tec­tion which is the Bel­gian Com­mis­sion for the Pro­tec­tion of Pri­va­cy (https://​www​.pri​va​cy​commis​sion​.be/)

If you have any ques­tions about this Pri­va­cy Pol­i­cy or wish to exer­cise any of the rights list­ed above you can con­tact us:

By email at mail@​safestroke.​eu; or By post at SAFE Sec­re­tari­at, c/​o The Stroke Asso­ci­a­tion, Att. San­dra Jack­son, Stroke Asso­ci­a­tion House, 240 City Road, Lon­don, EC1V 2PR, Unit­ed Kingdom