Welcome to Module 4 Role of Patient Voice

Module 4: Role of Patient Voice

In Mod­ule 4, using a com­bi­na­tion of the­o­ry and prac­tice, we the impact of the indi­vid­ual and col­lec­tive patient voice. You will devel­op an under­stand­ing the role of the stroke patient and sur­vivor in research and devel­op­ment of stroke guide­lines. You will learn how to argue for patient involve­ment and rights in the con­text of reg­u­la­to­ry, eth­i­cal and advi­so­ry processes. 

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Module 4: Acknowledgements

SAFE would like to take this oppor­tu­ni­ty to thank and acknowl­edge the con­tri­bu­tions made by those who have helped in the devel­op­ment of SSOFT and mod­ule 4.

Peer Reviewers

  • Stiftung Deutsche Schla­gan­fall-Hil­fe (Dr Markus Wagner)
  • Hel­lenic Alliance/​Action for Stroke Sup­port Orga­ni­za­tion (Dr Harik­lia Proios)
  • Mace­don­ian Stroke Asso­ci­a­tion (Dr Ani­ta Arsovs­ka & Dr. Maja Bozi­novs­ka Smiceska)
  • Norsk foren­ing for sla­grammede (Ms Grethe Lund)
  • Thes­sa­loni­ki and Wies­baden NRZ, Reha­bil­i­ta­tion Cen­ter Ger­many (Dr Dim­itris Artemis)
  • Aris­to­tle Uni­ver­si­ty, Greece (Dr Kate­ri­na Nicolaidis)
  • Ana­genis­sis Reha­bil­i­ta­tion Cen­ter, Greece (Ms Euge­nia Stamatiou)

Member Videos

Our mem­bers who have shared their expe­ri­ences and knowl­edge in the video inter­views used with­in the module:

  • Chris Macey — The Irish Heart Foun­da­tion, R.Ireland
  • Pni­na Rosen­zweig — Nee­man Asso­ci­a­tion for Stroke Sur­vivors, Israel
  • Markus Wag­n­er — Stiftung Deutsche Schla­gan­fall-Hil­fe, Germany
  • Monique Lind­hout – Hersen­let­sel, Netherlands
  • Jon Bar­rick – Stroke Alliance for Europe (SAFE)
  • Bjørn Magne Bakke — Norsk foren­ing for sla­grammede, Norway

Partner Organisations

Spe­cial thanks to our part­ner organ­i­sa­tion who con­tributed impor­tant con­tent; images, case stud­ies and data used in Mod­ule 4.

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We would also like to thank those who par­tic­i­pat­ed in the User Accep­tance Testing.