Welcome to Module 1 Support Organisation (SSOs)

Module 1: Stroke Support Organisations (SSOs)

In Mod­ule 1, using a com­bi­na­tion of the­o­ry and prac­tice, we explore what Stroke Sup­port Organ­i­sa­tions (SSOs) are; how they are found­ed and what com­mon prin­ci­ples they share, show­ing pos­i­tive exam­ples from around Europe.

You will devel­op an under­stand­ing of the role SSOs play in the health sys­tem; their objec­tives; and the types of activ­i­ties, such as net­work­ing, they must engage in to achieve their goals.

This will help you to con­sid­er the peo­ple, resources and skills required to set up or grow a Stroke Sup­port Organ­i­sa­tion with­in your own coun­try and con­text. At the end of each sub-mod­ule, you can test your knowl­edge with a sim­ple activ­i­ty or questionnaire.

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Module 1: Acknowledgements

SAFE would like to take this oppor­tu­ni­ty to thank and acknowl­edge the con­tri­bu­tions made by those who have helped in the devel­op­ment of SSOFT and Mod­ule 1.

Peer Reviewers

  • Sti­fi­ung Deutsche Schla­gan­fall-Hil­fe (Dr Markus Wagner)
  • Nee­man Asso­ci­a­tion for Stroke Sur­vivors (Ms San­dra Levy and Ms Pni­na Rosenzweig)
  • Stroke Asso­ci­a­tion (Mr Anil Ranchod)
  • Mace­don­ian Stroke Asso­ci­a­tion (Dr Ani­ta Arsovska)

Member Videos

  • Ani­ta Arsovs­ka – Mace­don­ian Stroke Association
  • Harik­lia Proios – Hel­lenic Alliance/​Action for Stroke Sup­port Organ­i­sa­tion, Greece.
  • Bjørn Magne Bakke – Norsk foren­ing for sla­grammede, Norway
  • Ove Puis­to – STROKE-Riksförbundet, Sweden
  • Jel­ka Jen­sa – Združenje bol­nikov scere­brovasku­larno bolezni­jo, Slovenia
  • Chris Macey – The Irish Heart Foun­da­tion, R.Ireland
  • Elli Ortinez – Fun­da­ció Ictus, Catalonia
  • Chatall Keller – Bletz asbl, Luxembourg

Partner Organisations

Spe­cial thanks to our part­ner orga­ni­sa­tions who con­tributed impor­tant con­tent; images, case stud­ies and data used in Mod­ule 1.

SSOFT Project Champions

  • Bjørn Magne Bakke – Norsk foren­ing for sla­grammede, Norway
  • Ove Puis­to – STROKE-Riksförbundet, Sweden
  • Diana Wong Ramos – AVC Portugal
  • André de Rosa Spier­ings – Hersen Letsel,Netherlands
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We would also like to thank those who par­tic­i­pat­ed in the User Accep­tance Test­ing. Thanks.